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Sexual Health Exchange, 1996 - no. 2
AIDS and Muslim communities: opening up
Shouket Ali
While HIV/AIDS increase in many Muslim countries, a common response has been to propagate Muslim ideals for protection. The political, social, cultural and religious frameworks in these countries often impede the development of effective prevention and support services. It is deeply taboo to discuss private matters such as sexuality in public.
Photo: P. Romijn, KIT
With the United Kingdom-based Naz Project, the Pakistan AIDS Prevention Society held an international consultative meeting in Karachi to address these issues in October 1995. Predominantly Muslim countries were represented, including Azerbaijan, Bangladesh, Egypt, Ethiopia, India, Indonesia, Malaysia, Morocco, Sudan, Tunisia, Turkey and Pakistan itself. In addition, Muslim representatives came from Europe and North America. Most of the 47 participants worked in community-based NGOs with AIDS programmes, with a few representing wider constituencies such as health professionals and women's organizations.
The meeting explored how Muslim religious and political concepts influence cultural and personal behaviours leading to HIV transmission as well as medical care and human rights. The participants recognized that AIDS is much more than a health problem, confronting people with their religious beliefs, sense of morality, ethics and their relationships. It highlights problems around gender relationships and inequalities, family and community concerns, economic empowerment and development, political frameworks and psychosocial issues.
A wide range of topics was addressed including women's and men's reproductive and sexual health, intravenous drug use, needs of youth, medical systems and antibody testing, the family, human rights, ethics and the law, living with HIV/AIDS, monitoring and networking. Specific recommendations were made for new orientations or practical action. These included enshrining the rights of people living with HIV/AIDS (PHAs) and their families and proposing practical ways to improve knowledge and develop prevention and support services.
Religion and culture
Participants recognized that religious and cultural practices are interwoven in complex ways. Many people in Muslim countries depend on Imams for interpretation of the Koran. In different countries and cultures, widely different interpretations have gained sanctity and cultural practices are often justified by religion even when there is no basis for this within Islam. For example, men often use religiously framed sanctions to disempower women, although Islam teaches the equality of women and men and acknowledges women as sexual beings in their own right.
Many participants noted that marriage is a particular focus for unequal relations that make women vulnerable. Cultural practices such as polygamy, limitations on female remarriage after divorce or widowhood, and Mut'a (temporary) marriages, were seen as increasing women's vulnerability. Participants also recognized the difference between the public Muslim face and what men may do in private without sanction, provided they are discreet. For instance, male to male sex, premarital and extramarital sex were acknowledged to occur in all Muslim countries, particularly where cultural and economic pressures exist to delay marriage. In reality, women may also diverge from publicly accepted sexual norms, but this is much more heavily condemned if it comes to light.
Awareness and prevention
The interdependence of culture and religion, and common misinterpretations of Koran teachings need to be addressed in developing effective HIV educational programmes. Participants considered that religious and community leaders often make statements based on cultural taboos and traditional customs rather than on Islamic teaching. For example, the Koran comments on both reproductive health and the wife's right to sexual pleasure with her husband and sees these in the context of the physical, mental and social health of both the individual and the community. The Koran does not demand female circumcision, although this dangerous practice is often justified by reference to it. The workshop recommended that all men and women study the Koran themselves so that they gain a clearer understanding of its teachings.
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WHO Regional Meeting
In 1991, high-level religious and public health officials in the Eastern Mediterranean region joined with WHO to discuss the role of religions in HIV/AIDS prevention and care. Among their conclusions:
Spiritual work must at all times be related to health and other efforts and should not be confined to certain issues or times.
In order to boost the effects of the media, education and communication efforts...scientific information must be combined with spiritual guidance in a well-organized educational effort.
Sex education is essential within the appropriate considerations of age and educational standards. It must be complementary to health education and religious instruction.
Religions do not allow the exposure of patients to discrimination, disgrace or neglect, for whatever reason, and no matter how their infection has occurred.
Protection and support must be extended to the families of affected people, so that they are able to provide the necessary care for their relatives.... |
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Differing views were expressed on the role of Shari'a law as a deterrent for high- risk behaviour. In countries with a strong emphasis on shame over any deviation from sex within marriage, public campaigns emphasizing these Muslim values were felt particularly important. Participants also recognized that the use of shame drives HIV/AIDS underground, making it harder to cope with and control.
A second strategy of "discrete" prevention methods was deemed acceptable to address the needs of marginalized groups or those practising high-risk behaviours. This could include condom promotion and distribution and other approaches sought by the communities themselves. Part of the strategic response should be community funding and empowerment to help support groups and activists take action themselves.
Lack of information
A major concern among participants was the lack of data on actual sexual behaviour and the diversity of sexual behaviour within and between Muslim communities. Women, men and young people were felt to have little knowledge about their own and each others' bodies, sexuality, HIV/AIDS and STDs. This can have serious consequences for risk perceptions and sexual beliefs and practices. Many myths and traditional beliefs exist about the body and need to be addressed effectively through education, but cultural taboos make it difficult to discuss them. Even programme implementers often lack good personal knowledge about HIV/AIDS and related subjects.
Another serious problem in building up effective AIDS service organizations is the extent to which staff feel insecure in relation to political and religious leaders because of the sensitive nature of their work. In a religious climate that respects silence on private areas of life, it is deeply disturbing to start open discussion of sexuality and related issues. Cooperation and understanding between the leaders and educators should be strengthened to create a safe environment to explore sensitive issues around AIDS. This is also essential for the development of sustainable initiatives that can continue to gain adequate financial and technical support.
To address the informational needs in this sensitive climate, confidential and "safe" channels must be found. The workshop recommended the establishment of free confidential telephone lines staffed by individuals trained to deal with reproductive, sexual health and intravenous drug use issues.
Human rights, care and support
All Muslims were felt to have a sacred duty to endorse the right of PHAs to appropriate and compassionate treatment, care and support that respects confidentiality and human rights. Strong support was given to endorsing PHA rights through public awareness campaigns and developing legislation against discrimination and human rights abuse.
Though there appears to be a conflict between the rights of the community for protection against HIV infection and individuals' rights in the context of confidentiality, participants felt that these two frameworks need to be seen in a complimentary context. Recognizing that women's socio-economic and political status makes them extremely vulnerable to HIV infection, the meeting emphasized that AIDS policies should strengthen rather than undermine women's emancipation and human rights.
In exploring PHAs' needs, the participants discussed the economic, social and psychological impact of infection as well as health needs. Calls were made to train more counsellors to help individuals and families cope, and to link counselling training with information on how to help people access financial, practical, medical and other support. Counsellors should be able to refer people to community support, self-help groups as well as formal government and NGO support services. New forms of support would also be needed, including homehelp and dropin facilities. A Social Care Fund could be established by government and Muslim institutions to help develop the new services required.
The meeting further addressed medical issues including traditional treatments and care, HIV testing, drug trials and safety of blood supplies. Human rights were again emphasized and the need to make nonallopathic treatments, safe needles and syringes, HIV tests and modern medical treatments available and affordable to everyone.
Skills development and networking
Programme implementers were noted often to lack financial and management skills or the capacity to monitor and evaluate their work. The meeting recommended that training programmes be established or expanded regarding appropriate organizational development, including the development of effective models of community peer evaluation. This would be particularly important among community organizations so that they develop credibility.
Training needs also extended to policy-makers, management boards, staff at different levels and volunteers in NGOs and other agencies. The meeting recommended that training cover appropriate outreach programmes, community involvement, designing education and intervention strategies, needs assessments, project management, grant writing, financial management, monitoring and evaluation and educational resource development.
The value of networking was acknowledged, as it reduces the sense of isolation in which many groups operate; it was recommended that agencies share experiences and lessons learned. A call was made for funding to develop international networks of Muslim NGOs and PHAs, and for further consultative meetings. A report of this first consultation is now available from the Naz Project. It is hoped that this will form the basis for continued discussion and appropriate programmatic responses over the coming years.
Shouket Ali, Pakistan AIDS Prevention Society, P.O. Box 8756, Saddar, Karachi, Pakistan; Tel: 92-21-262-6142; Fax: 92-21-262-6424; Ali Orhan, The Naz Project, Palinswick House, 241 King Street, London W6 9LP, United Kingdom; Tel: 44-181-563-0191; Fax: 44-181-741-9841; e-mail: 100647.3422@compuserve.com |