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Sexual Health Exchange 2003-3&4

Claiming space: Promoting and facilitating young women's activism around HIV/AIDS

Shamillah Wilson

HIV/AIDS has become an urgent matter for women and men of all ages. With more than half of all infections among women, most of them young, it is without question young women are most drastically and cruelly impacted by the pandemic. Many adolescent women are engaged in HIV/AIDS interventions that are either related to information, education and communication, or service provision. As important as these strategies are, there is also a need for greater analysis and interconnection of the issues; particularly from the local to regional to global level. To be effective, young women's engagement in the fight against HIV/AIDS should be at different levels across different movements.

Youth leadership and participation is by no means a new idea, the presence of youth is attested to by at least 23 UN Conventions, Covenants and Recommendations. References to youth, particularly young women, are spread across UN documents spanning 1965-2004. While there are increasing numbers of young women engaging in the national and international arenas, their voices are often marginal and their presence less visible.

Many times, separate spaces are created for young people to build their agendas for change (such as youth forums and youth camps preceding bigger events) without bridging these with a space for multi-generational dialogue and development of a collective agenda for social change. This means that young women's issues and voices continue to remain on the periphery and never really become part of the mainstream agendas; while decisions that affect their lives are ultimately being made without their direct input.

Agents of change

Developing young women's leadership means providing the type of support to equip them to take up leadership in strategic and meaningful ways. It means moving away from the young women as ‘victims' ideology to one of agents of change. At a meeting of Asia/Pacific women a couple of years ago, a group of young women, after feeling excluded from more substantial discussions, took control of the microphones and overtook the podium ‘to claim space and make their voices heard'. This episode led these young women to form the Network of Asia Pacific Youth (NAPY). Its focus and strategy is to work for young people's reproductive rights and empowerment within the framework of the Cairo Programme of Action and the Beijing Platform for Action.

Activists and advocates

The Young Women and Leadership programme of the Association for Women's Rights in Development (AWID) advances the priorities of young women by recognizing the importance of strategizing and coordinating their creative visions. This programme, designed, driven and implemented by young women, provides an opportunity to cultivate a new generation of activists and advocates for women's rights.

In 2002, AWID and UNIFEM hosted an electronic discussion around the issue of HIV/AIDS and young women. For more than five weeks, over 600 young women from across the globe debated the impact of the pandemic and shared and developed prevention strategies. Following this successful discussion, UNIFEM and AWID decided to publish its main discussion points for a wider audience: specifically the constituency that does not have access to the Internet. The resultant publication is Act Now: A resource guide for young women on HIV/AIDS, which is an easy to use book with tools and information for those who want to start campaigns and raise awareness about the issues affecting young women in terms of HIV/AIDS.1

Moving forward, AWID held its first Young Women and Leadership Institute in Africa (Cape Town, 2003) on the issue of HIV/AIDS and poverty. At this meeting, young women from the region identified the following ways to ensure that their efforts become more strategic: a) the need to connect issues of HIV/AIDS, poverty, and human rights; b) the need to integrate economic advocacy efforts into a framework for addressing their rights in the context of HIV/AIDS; and c) the need for a network to coordinate these efforts.

Involving young women in national agenda-setting

In the online discussion around young women and HIV/AIDS facilitated by AWID/UNIFEM, one participant noted that without proper coordination between women's groups and the youth sector, it is difficult for young women to become meaningfully involved in HIV/AIDS work, even when there are a lot of resources. Young women's engagement in the fight against HIV/AIDS should be at different levels across different issues and movements. In 2004, as a follow-up to the regional meeting held in 2003, and to further young women's involvement in strategizing and agenda-setting at the national level, AWID conducted leadership institutes in Kenya, Nigeria and Zambia.

These institutes are facilitated by a group of regional and international activists and practitioners with a focus on building young women's skills on analysis (gender, human rights, economic), leadership and advocacy. Through a focus on HIV/AIDS and poverty, participants do a visioning exercise for social change and identify policy instruments, opportunities and gaps. Strategies are then developed (with very concrete interventions and timeframes) for working towards this vision of social change. The importance of this initiative is that it encourages participants to build a comprehensive picture of the different issues and factors impacting on their particular concern (in this case HIV/AIDS and poverty) and locate this within the broader fight for social change. Through this, it becomes clear that in order to address the particular concern and to have a sustainable impact, other initiatives for social change need to be supported and supplemented.

Building a new generation's advocacy

Other organizations have also identified the need to develop young women's capacity for advocacy. The Centre for Women's Global Leadership has since 1989 run leadership development workshops to build the capacity of participants from all regions of the world to become more effective women's human rights leaders in policy and practice. In September 2003, DAWN (Development Alternatives for Women in a New Era) held its first ever Feminist Advocacy Training Institute for young women from the Global South in Bangalore, India. This followed the organization's realization that it was no longer speaking the language of young women and that it needed to share knowledge and to contribute towards building a sustainable movement that sees the world from a feminist perspective. DAWN has followed up the workshop with regionally focussed meetings to build young women's networks and advocacy in Latin America, Asia and Africa.

Furthermore, youth-led organizations are also starting to take up the challenge of young women's leadership in strategic arenas. An example of this is the Young Women's Leadership Institute of Kenya. One of their primary goals is to lobby and advocate for policy change through a network of young female activists. The group formed following national-level policy discussions around HIV/AIDS in which young women's participation was marginal.

Ensuring that young women's rights are protected presents a unique challenge that will require a tremendous amount of energy, new actors, new visions, new skills, new analysis and new strategies. In the context of HIV/AIDS, if we are to address the profound economic, social, cultural and health effects of HIV/AIDS in addition to the rise in poverty, it is critical that we look at how to channel our energies strategically. Young women, in particular, need opportunities and support in order to take up the challenge of leadership for social change.

Shamillah Wilson, Young Women and Leadership Program Manager, Association for Women's Rights in Development (AWID); 2nd Floor, Community House, 41 Salt River Road, Salt River, 7925, Cape Town, South Africa; tel.: +27-21-447.88.21, fax: +27-21-447.96.17, e-mail: swilson@awid.org, www.awid.org/ywl

1. Act Now: A resource guide for young women on HIV/AIDS. UNIFEM & AWID, 2002, www.awid.org/publications/ActNow.pdf.

Greater involvement of young women living with HIV/AIDS

In the vision paper HIV Positive Young Women (2004), ICW, the International Community of Women Living with HIV/AIDS, writes that "the concerns of HIV-positive young women and girls are often absent form HIV advocacy agendas and sidelined in research, and HIV-positive women, old and young, are often excluded from debates about treatment and prevention." To begin to address this lack of visibility, ICW, together with the Youth Against AIDS Network (YAAN) and the Gender AIDS Forum hosted ‘A Dialogue for Young Women living with HIV/AIDS' in Durban, South Africa, in April 2004. At this meeting, young women from Eastern and Southern Africa identified three key priorities for action:

1. Increase access to sexual and reproductive health and rights – Young women living with HIV/AIDS have specific reproductive and sexual rights issues. Many HIV-infected women experience a violation of their rights, e.g., by sexual partners and health providers. There is a lack of access to free sexual and reproductive services, including prevention of mother-to-child transmission. In most countries the termination of pregnancies is not legal. According to the Dialogue participants, governments should set up policies and programmes to respond to the sexual and reproductive needs of young women living with HIV/AIDS. They should be involved in the planning and implementation of policies; and programmes should involve and train all who are in a position to provide guidance to young women living with HIV/AIDS.

2. Increase access to antiretroviral therapy, and prevention and treatment of opportunistic infections – More needs to be known about the differences between women and men living with HIV/AIDS as there is little research focusing on the treatment needs of (young) women. Whilst policies exist they are not always implemented. Policies often do not take gender differences and the realities of HIV-infected young women into account.

3. Increase participation at the local, national and international levels – There is a lack of meaningful and active participation of young women living with HIV/AIDS in developing, implementing, and evaluating policies and programmes at the leadership and management levels. The ‘voicelessness' of women in general and young women in particular occurs in all sectors of the society – in the home, health-care facilities, workplace, religious organizations and institutions, communities and government. It is also evident within AIDS organizations and civil society groups. In general, young women living with HIV/AIDS are not organized and do not have the skills to address their issues. Networking is not happening and organizations will not put issues of young HIV-infected women on the agenda without young women pushing them to do so. Space therefore needs to be provided to young women to make their voices heard.

Source: Workshop report A Dialogue for Young Women living with HIV/AIDS, Durban, 19-23 April 2004, www.icw.org/tiki-download_file.php?fileId=81

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